Wikipedia project takes on global healthcare information gap

English Wikipedia has more than 25,000 medical articles, which receive approximately 200 million page views a month. The encyclopedia is one of the foremost health care resources in the world, used by the lay public as well as professionals. Surveys have found that between 50 and 100 percent of physicians use Wikipedia in their clinical practice, and Wikipedia is consistently at the top of Google web searches for medical terms.

Wikipedia’s Medicine Translation Task Force is an initiative established in late 2011 to make sure that the content readers are finding is accurate, unbiased, and accessible. As part of this endeavor, the task force is taking 80 core medical articles–articles like cancer, malaria, HIV/AIDS, and tuberculosis–and improving their quality to a good article or featured article status through a process of peer review by task force participants. Though 80 might not seem like much, these articles are very popular, with over 10 million page views per month. Eventually they hope to have these articles formally peer reviewed, published in the journal Open MedicinePLoS Medicine, or the Journal of Medical Internet Research, and then ultimately indexed in PubMed. The first article is already in the publication process.

The ultimate goal is to provide health information for every person on the planet in the language of their choice. One of the biggest challenges has been reaching out to the often ignored non-English demographic.

“The only viable platform to get health care information out to the whole world is Wikipedia,” said Dr. James Heilman, an editor and English Wikipedia administrator (Jmh649). Heilman, or “Doc James” as many people refer to him, is the founder of the task force. “I asked myself, ‘How can I get high-quality health care information to everyone in the world?’”

A plan developed to take the improved English Wikipedia articles and translate them into the multiple language versions of Wikipedia. Heilman sought out Translators Without Borders (TWB) a non-profit whose mission is to provide humanitarian translation for other non-profits and NGOs worldwide. The initial goal of TWB’s inolvement is to take the 80 peer-reviewed, core articles and translate them into 80 different languages.

Lori Thicke, co-founder of Translators Without Borders, said partnering with Wikipedia would help “bridge the language last mile for access to high quality health information.”

“Wikipedia has the reach to make a major impact on public health in the developing world. Because of language and physical barriers, the health information we take for granted is locked away from the people who need it most — those with the deadly combination of relentless poverty, a high disease burden and grossly inadequate health resources,” said Thicke. “Yet these people are connected. Increasingly their phones are Internet-enabled and they are ready to move into the digital age. We need to help them.”

While the task force aspires to translate content, another goal is to do so at a level of complexity that is accessible for every reader. Heilman and Thicke enlisted the support of Content Rules, a company that specializes in professional simplification of technical content. Although they typically focus on information technology, Content Rules offered to take on simplifying the entire first batch of 80 medical articles (13 have been simplified as of this writing).

“When people can actually read medical information and understand it, it can save lives,” said Content Rules CEO Val Swisher, who put a call out for pro-bono editors to work on the Wikipedia medical articles in late 2011. “The response I got from my network was so overwhelming that I literally had to turn people away.”

Swisher explained that although the articles are outside the core area of her company, Heilman is there to review them and Content Rules does have some medical experts on staff. “Our purpose is to take deep medical information and make it understandable,” said Swisher. “So, if we don’t understand it, then we have to rewrite it. And if we do understand once we are done, then we know we’ve been successful.”

Once the simplified articles have been translated, Heilman and the task force members search for Wikipedia editors who can integrate that content into their own language version of Wikipedia. Heilman said he is currently on the lookout for editors from the Dari, Turkish, Polish, and Vietnamese projects, as well as any others who think they can help.

“No one else is attempting to solve the problem of delivering medical information in the other 280 plus languages we work on,” said Heilman. “We need to make sure that when the next billion people come on line — those who don’t speak English, Spanish, or French — that there’s something there for them.”

(You can monitor the progress of the translations here or sign up to become involved here. For further reading, see the Wikipedia Signpost’s coverage of WikiProject Medicine)

Source: Wikimedia blog, 9 August 2012
Author:  Jake Orlowitz

 

 

Can better content save lives?

Lori Thicke about Translators without Borders doing medical articles with Wikipedia.

Source: Translators Without Borders

TWB Kenya Healthcare Translation Training Program

An overview of Translators without Borders and its work in the Kenyan Healthcare Translation Training Program, featuring an interview with co-founder Lori Thicke

EMA boosts EU transparency with online publication of suspected side effect reports

 

 

 

Member States and the Agency release data on medicines in compliance with EudraVigilance access policy

31/05/2012 – The European Medicines Agency has today begun publishing suspected side effect reports for medicines authorised in the European Economic Area (EEA) on a new public website: http://www.adrreports.eu. The reports come directly from the European Union (EU) medicines safety database EudraVigilance, and are one of the many types of data used by regulators to monitor the benefits and risks of a medicine once authorised. The launch of the new website is part of the Agency’s continuing efforts to ensure EU regulatory processes are transparent and open and is a key step in the implementation of the EudraVigilance access policy.

The information published today relates to approximately 650 medicines and active substances authorised through the centralised procedure, which is managed by the Agency. Information on the website is presented in the form of a single report per medicine or active substance. Each report pulls together the total number of individual suspected side effect reports submitted to EudraVigilance by Member States and marketing-authorisation holders. These aggregated data can be viewed by age group, sex, type of suspected side effect and by outcome. Within a year the Agency aims to additionally publish suspected side effect reports for common drug substances used in nationally authorised medicines.

A side effect (also known as an adverse drug reaction) includes side effects arising from use of a medicine within the terms of the marketing authorisation as well as from use outside the terms of the marketing authorisation, including overdose, misuse, abuse and medication errors, and those associated with occupational exposure.

All information on the website relates to suspected side effects. Suspected side effects may not be related to or caused by the medicine, and as a result, the published information cannot be used to determine the likelihood of experiencing a side effect or as an indication that a medicine is harmful. All users of the website are asked to read and accept a disclaimer explaining how to understand the information before they view a web report.

Medicines are an important part of modern healthcare, providing effective treatments for many diseases and conditions. For a medicine to be authorised for use in the EU the benefits of the medicine must always outweigh the risks.

Today’s launch also highlights the importance of side effect reporting and pharmacovigilance in safeguarding public health within the EU. Side-effect reporting is a key element in ensuring the detection of new or changing safety issues, and the Agency continues to further strengthen its work with partners and stakeholders across Europe to ensure a robust system for safety signal detection.

In June, the Agency will launch the website in the remaining 22 official EU languages.

Press release issued May 31st, 2012 on the EMA website – http://www.ema.europa.eu